1) Participate in Research

Help shape the future of vasculitis care by sharing your lived experience.
Your input guides better treatment, services, and understanding.

• Ongoing Opportunities:

• VASQOLCANADA Quality of Life Survey

• Patient-Powered Research (VF Registry)

• CANVAS-C National Vasculitis Cohort
  → Each project values patient partnership, not just participation.

 

 

 

2) Join Community & Peer Support

You don’t need to walk this alone.
Connect with people who understand the journey through:

• Monthly support circles

• Young adult groups

• Parent & caregiver communities

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3) Volunteer Your Skills

You don’t need medical expertise — just heart and willingness.

• Help with events or awareness campaigns

• Share your lived experience as a patient advisor

• Assist with digital content, social media, or community outreach

• Support local advocacy initiatives in Alberta

 

 

 

4) Spread Awareness

Small acts help people find diagnosis sooner:

• Share educational posts

• Host a “Vasculitis Awareness Day” at school or work

• Request pamphlets for clinics or community spaces

• Wear red on May 15th (Vasculitis Awareness Day)

 

 

 

5) Donate

Your support helps:

• Fund research

• Build patient programs

• Provide educational materials

• Support families navigating diagnosis and treatment

 

Every contribution strengthens the vasculitis community.